Module 4
Protecting individual's rights when sharing data
Module 4
If this investment will involve the collection, access, use or sharing of data about people, are their rights considered and protected?
This module looks at key definitions, information about rights over personal data, and some techniques for reducing the risks related to handling personal data.
eLearning Module
Ensure the rights of individuals are protected while maximizing the utility of data.
Tools and Resources
In this module there is a cheat sheet, two guides, plus the WWARN case study.
What does good look like?
Does it recognize and protects any and all rights associated with the data, whether local, regional, national and/or global?
Module 4
eLearning Module
Login or sign-up for a free CABI Academy account to get started. In this module you will learn how to:
- Identify and define personal data
- Explain the rights of individuals over personal data
- Apply a number of techniques to maximise utility of data while protecting rights.
Module 4
Tools and Resources
Cheat Sheet
Protecting individual's rights when sharing data
All the key points from the eLearning module in one tidy document.
1 MB
Guide
Anonymising data in agriculture
This guide will help grantees to navigate one of the biggest barriers to sharing data: legitimate concerns over breaking legal obligations, security breaches or causing harm to individuals, communities or society.
2 MB
Guide
Protecting people
One of the biggest barriers to sharing data is legitimate concerns over breaking legal obligations, security breaches or sharing data that could cause harm to individuals, communities or society. This guide will help Bill & Melinda Gates Foundation grantees to navigate these concerns.
1 MB
Case Study: WWRAN
Sharing Personal Data
By allowing researchers to access a decade of their research data, the Worldwide Antimalarial Resistance Network (WWARN) has made a significant contribution to the fight against drug resistance for one of the world’s deadliest infectious diseases. These are the insights.
2 MB
Module 4
What does good look like?
Question
If this investment will involve the collection, access, use or sharing of data about people, are their rights considered and protected?
Data Purposeful
The investment sets out how the rights of individuals will be protected and recognises any related actions (e.g. anonymization) or specialist support required. Relevant local, regional, national and international data protection regulations are identified and their impact on the investment objectives is clear.
Data Aware
The investment identifies the need to protect the rights of individuals when data about them is accessed, used or shared. It is working towards understanding what these are and how they impact investment objectives.
Data Unintentional
Relevant local, regional, national and international data protection regulations are not yet identified.
The investment does not consider what constitutes personal data.
and/or
The investment does not identify the rights individuals should have over data about them.
To find the definitions of these headings and see what good practice looks like across all seven modules: Download PDF
Module 5
Sharing data through data licensing
Is this investment proposing to share data?
Value can be created from data when it is collected, accessed, used and shared.
Data sharing agreements and data licenses provide ways to safely share data and maximise its reuse. Without them legal permission and restrictions can be unclear to potential users and innovation suffers as a result.
